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Poznati pevaju deci oboleloj od Batenove bolesti

Sergej Ćetković, Željko Vasić, Boris Režak i grupa Frajle nastupiće na velikom humanitarnom koncertu za decu obolelu od Batenove bolesti.

Koncert će se održati narednog utorka, 10. aprila u Domu omladine Beograda, a organizator je Udruženje roditelja dece obolele od Batenove bolesti Život.

Batenova bolest je retka, fatalna, autosomalna, recesivno, nasleđena bolest nervnog sistema, koja počinje u detinjstvu. Deci oboleloj od Batenove bolesti zbog mutacije gena nedostaje jedan enzim, pa se otrovi talože u mozgu i napadaju pojedine centre. Kao rezultat ovoga deca  pate od epileptičnih napada, progresivno gube motoričke funkcije, vid i mentalne sposobnosti, a životni vek  je između 8 i 12 godina. Do danas, lek za Batenovu bolest nije pronađen, ali postoje razne alternativne metode kako bi deci olakšali život. Batenova bolest se trenutno leči u Kini i Americi metodom ubrizgavanja matičnih ćelija u kičmu, koja je dugotrajna i veoma skupa.

Ulaznice za humanitarni koncert mogu se kupiti na blagajni Doma omladine Beograda po ceni od 1000 dinara.

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